An update on my condition

[kannik]

Wow, krash, that`s a lot of things to contend with.
I hope that you can at least have some help with the
headaches! I thought that certificate was a nice
gesture from the Cancer Center, just to let you know
that THEY appreciate what you`re going through and
thank you for doing your best with it all. Please keep
us posted and we too will be with you in spirit, pulling
for your success and later good health.

[JanetC]

krash, Keeping you in my thoughts and prayers. Very nice certificate.

[ChickasawStampMan]

You and your family are in my thoughts and prayers. One day at a time, man!

[Neves (AUS, BRA)]

You will win this battle in your mind. Think positive! And carpe dien

[krash]

  OK, I thought you might appreciate a quick update. I start Chemo again today at 8:00AM and I'm still having complications from the radiation therapy on my brain! The cancer has spread to my brain and there is at least 5 tumors that they know of..but, so far NOTHING  - none of the treatments so far (chemotherapy) has done anything, not to even slow it down (one Dr. said it might have but the rest said no ) so if this round don't work then I'm basically done with it. It's nothing short of torturous and makes me so gosh darned ill that it's just unbearable and  basically robbing me of whats left of any (QOL) as well as quantity of time for my blessed Daughter and my sweet Amy and, of course my family (& you all). I'm not giving up just trying to triage weather the ends justify the means.

  If you haven't been in my shoes then please don't be too quick to judge me. I really do value your opinion so I'd like to hear from you. Plus I need some US material to sort. Anybody have any extra cover or stamps you would want me to sort and organize for you? I'm very trustworthy. I just get bored and don't have anything stampy to really keep me focused. I just thought I'd mention it. -Jeff

[Admin Bear]

FIsrt off i do not think anyone will judge you.. Personally i have witnessed the ravages of Chemo and while i have not been in your shoes i can certainly understand why you would not want another round...

I cannot legally advocate for plants that the Federal Government has deemed illegal but you may want to read some of the great research on a very effective weed that can be used to help.. just saying..

As to the sorting and trust worthiness..

Krash has sorted a number of early US stamps for me and even found a nice high (for me) value stamp and i got back every single one i sent him.. if you need help with early US (ok with any US) Krash is your man..

[Butterfly]

Boy, you leave me hard pressed to find any words. I've not had chemo and and I've also not known anyone coping with it. I only have the experience of having lived long enough to have eyes, muscles, balance, hearing, etc. decline to the point where, when I wake up in the morning I say "I've been given another BONUS day." Take each day one at a time seems rather trite, but it works for me.

[krash]

Mar 10, 2015 6:46:30 GMT -5 Admin Bear said:

FIsrt off i do not think anyone will judge you.. Personally i have witnessed the ravages of Chemo and while i have not been in your shoes i can certainly understand why you would not want another round...

I cannot legally advocate for plants that the Federal Government has deemed illegal but you may want to read some of the great research on a very effective weed that can be used to help.. just saying..

As to the sorting and trust worthiness..

Krash has sorted a number of early US stamps for me and even found a nice high (for me) value stamp and i got back every single one i sent him.. if you need help with early US (ok with any US) Krash is your man..

My doctor beat you to the punch actually. Thank you for caring that much and being a friend all these years, You are good people and I'm proud to know you. -Jeff

P.S.
My dose went up to 5 mg's 3 times a day since I took these pics.

[samb]

I can't say much, since I haven't personally gone through what you have... I think prayer is usually the best way to go.

I've been meaning to send you some early US to sort for me, but just haven't got around to it. If your shipping info is still the same, I'll send enough to keep you busy for at least 2 days... 2 months for the rest of us

[kannik]

I`m still pulling for you, krash, and wish you the very
best, hoping that you will find the strength and will to stay on
the treatment (though I`ve heard it can be HORRIBLE!)
Keep telling us how you`re doing and we`ll do our best
to keep encouraging you.

[Perfs14]

Listen Iron man, you have nothing to prove to us. We see that you are made of stern stuff and you are our hero in that eternal battle. Well done, good friend. None are here to judge you only to admire your courage.

Unfortunately I have little or no US old or new to send, if I had i would trust you completely with them.

Cheers mate and good on you!

alex

[krash]

easy there captain, I wasn't trying to be anything but scared and that's where I get sometimes so I said what was on my mind. I didn't mean to illicit any sort of response just telling it like it is. perhaps it was a bad idea.

[crazyquilter]

First let me say, krash, my thoughts and prayers are with you and your family. Please don't stop your updates as we care about you and like to know if there is anything we (Your Stampbears Family) can do for you. Please send me your address by PM.

CQ

[FairyFoot]

All I can do is {{{Hug}}}

[kannik]

We had a genuine hugger outside the Vendome
Metro Station the other day. Just about everybody
was accepting hugs, so I did too. The guy
gave me a card to pass on, so I went into the
Metro, where there were several Boomers meeting
to go out for Chinese food and I immediately
passed it on. In fact, the hugs were passed all
around and I ended up with the card again - to be
passed on. I think that`s a great idea - as long as
it`s out in the open, you know!

[krash]

I was just released from Hospital a little bit ago. Apparently I have a sever case of THRUSH. It's very painful so I might not be on for a bit. The whole inside of my mouth is sloughing off and there are little blisters everywhere, I can't swallow anything despite the morphine they gave me. I just wanted to update you quickly. -Jeff

[khj]

Wow, sorry to hear that krash. It's a side effect of chemo/radiation therapy. Many people actually have the fungus in their mouth and never realize it because it never gets to the point of blisters. Your immune system was too suppressed to fight it off.

Have they started giving you an anti-fungal, or are they holding off on it to see if you can fight it off naturally?

From a non-pharmaceutical perspective, do a lot of warm salt water rinses (don't swallow); there may be some slight stinging the first few seconds, but that should improve over time as your thrush subsides. If the doctor hasn't already warmed you, avoid mouthwash at all costs -- it will make things worse.

Keeping you in prayer during these tough times...

[krash]

KHJ that's exactly what I done but the uber-blisters was just so bad and and I couldn't swallow (food) so I had to go to the hospital. They gave me this this stuff called "Magic Mouthwash" lidocaine, Maalox and benadryl. Works great too. impressive actually. and also a RX of Fluconazole 100ng.(Diflucan). -Jeff

[khj]

Yeah, the same concoction works great for minor ulcers, too (benadryl not needed). I've taken it before, where I actually had to swallow -- in your case, better not to swallow. It's not the normal consumer mouthwash (e.g., Listerine...) -- that's what I meant to avoid in the previous post. I forgot it has the nickname "Magic Mouthwash". The one you got, the lidocaine is a numbing agent and the Maalox helps coat. Glad that is working.

Make sure you complete the diflucan as per doctor instruction. You don't want the thrush to become systemic.

Regarding the benadryl. Seems like more and more oncologist are starting to use benadryl more often to counteract chemo side-effects (especially allergic reactions). The wife of my friend was about to quit her chemo when another oncologist suggested she start taking benadryl. Her skin and breathing problems abated and she was able to complete all her chemo treatments. Early this year, the doctor diagnosed her cancer in remission.

Will keep you and your family in prayer...

[krash]

Yeah it worked great! and the antibiotic/yeast.fungal or whatever it was is really kicking some serous butt! I'm coming back around slowly but surely. I'll try the benadryl thing. I've taken Benydryl for years and never done me wrong so I think that's what I'll do. -Jeff